National Bowel Cancer Screening Program's Information Booklet

Protecting your personal information

Page last updated: 13 July 2020 (this page is generated automatically and reflects updates to other content within the website)

What information is kept by the Program Register?

The Program Register is administered by the Department of Human Services. It keeps personal information such as your name, contact details, age, gender, Medicare number, results of your screening test, the name of your nominated doctor and other health professionals who provide screening services to you and the results of any further tests you may have such as colonoscopy and histopathology results.

To invite you to take part in the program your name has been drawn from either the Medicare or Department of Veterans’ Affairs enrolment records.

What will this information be used for?

Your personal details will be used to:
  • remind you to complete your FOBT;
  • assist you to receive appropriate follow up and access to health services in accordance with clinical guidelines;
  • send reminder letters and/or make telephone calls (where necessary) to you and your nominated doctor;
  • contact medical service providers to request relevant reports be submitted to the Program Register;
  • check Medicare and Department of Veterans’ Affairs claims for bowel examinations if required; and
  • monitor and evaluate the effectiveness of the program and its impact on the incidence of bowel cancer.

Is my information on the Program Register safe?

You can be assured that your personal information and test results kept on the Program Register are protected by the Privacy Act 1988 and your personal details will be handled in accordance with the Australian Privacy Principles set out within that Act. Further information is available on the Program website.

Who will my information be provided to?

Personal information kept on the Program Register may be disclosed to health professionals who provide services under the program, such as your nominated doctor, medical specialists, the pathology laboratory responsible for analysing your FOBT samples, employees and contracted service providers of state and territory health departments, the Australian Government Department of Health, the Australian Institute of Health and Welfare and any authorised third party you have nominated.

What if my personal details are incorrect or change?

If your personal details change or are listed incorrectly please call the Program Information Line on 1800 118 868.